Skip to main content

Posts

Showing posts from August, 2016

A Fortnight

It's been two weeks since I came out of treatment after having five days of Lemtrada. So, how do I feel? What have I been up to? I'll tell you. I would say that the for the first week after the treatment, I was a bit touch and go and playing things by ear. Most nights I would wake up with a headache and felt like I had been to a party that I, unfortunately, had no recollection of. I would wake up with what most would describe as a hangover, but without the good time, in-jokes or banterous tales to tell. What the infusion nurses had warned me of (but consultant had thought unnecessary to mention...??!) was that I may experience an exacerbation of previous relapse symptoms I may have suffered previously. For me, this meant deep pains in my back and neck, but do you know what, I'll take that over a completely new relapse or further damage. Practicing mindful meditations for pain leading up to treatment meant that I could put what I had learnt to the test, finding a self-co